Helix Insight

Documentation / Reference Databases / ClinGen

ClinGen

The Clinical Genome Resource (ClinGen) provides expert-curated dosage sensitivity assessments for genes. Haploinsufficiency and triplosensitivity scores indicate whether a gene is sensitive to copy number changes, which serves as a proxy for inheritance pattern in ACMG classification.

Database Details

VersionLatest release
Records~1,600 genes with dosage assessments
Sourceclinicalgenome.org
ProducerClinGen Consortium (NIH-funded)

Role in ACMG Classification

ClinGen dosage scores provide inheritance pattern proxies that calibrate frequency-based ACMG criteria:

BS1Strong Benign

Haploinsufficiency score = 3 is used as a proxy for autosomal dominant inheritance. When triggered, BS1 applies a stricter frequency threshold (AF >= 0.1%) compared to the default recessive threshold (AF >= 5%).

BP2Supporting Benign

When a variant is a compound heterozygote candidate and ClinGen haploinsufficiency score = 30 (dosage sensitivity unlikely), BP2 applies. This combination suggests the variant is less likely to be pathogenic in a dominant context.

Columns Loaded (2)

ClinGen data is joined on gene symbol. Each variant inherits its gene-level dosage sensitivity scores.

haploinsufficiency_scoreINTEGER

Haploinsufficiency assessment score. Values 0-3 indicate evidence level for haploinsufficiency. Special values: 30 = autosomal recessive phenotype, 40 = dosage sensitivity unlikely.

triplosensitivity_scoreINTEGER

Triplosensitivity assessment score. Same 0-3 scale as haploinsufficiency. Indicates sensitivity to gene duplication (three copies). Currently informational in Helix Insight and not directly used in ACMG criteria.

Haploinsufficiency Score Interpretation

ScoreEvidence LevelMeaningUsage in Classification
3Sufficient evidenceMultiple independent studies demonstrate haploinsufficiency causes disease. Gene is intolerant to loss of one copy.Used as proxy for autosomal dominant inheritance in BS1 threshold selection.
2Emerging evidenceSome evidence suggests haploinsufficiency, but additional studies needed.Informational. Does not affect ACMG criteria thresholds.
1Little evidenceLimited or conflicting evidence for haploinsufficiency.Informational. Does not affect ACMG criteria thresholds.
0No evidenceNo published evidence for haploinsufficiency.Does not affect ACMG criteria.
30Gene associated with autosomal recessive phenotypeDisease mechanism requires biallelic variants.AR proxy. Used to calibrate BS1 frequency thresholds and BP2 logic.
40Dosage sensitivity unlikelyEvidence suggests the gene tolerates copy number changes.Used in BP2: dosage sensitivity unlikely supports benign interpretation for compound heterozygotes.

Limitations

ClinGen covers approximately 1,600 genes. Variants in unassessed genes will have NULL dosage scores.

Dosage sensitivity is a gene-level property. It does not distinguish between different variant types or positions within the gene.

The haploinsufficiency score is used as an inheritance proxy, not a direct measure of variant pathogenicity.

Genes with score 0 (no evidence) are not the same as genes with negative evidence -- absence of evidence is not evidence of absence.

Reference

Rehm HL, et al. "ClinGen -- The Clinical Genome Resource." New England Journal of Medicine. 2015;372(23):2235-2242. PMID: 26014595.